“I got emptENS bleedingy nose syndrome in 2011 and I truly died on that operating table. Empty Nose Syndrome is the worst condition to live with on this planet. You get ENS when a sinus surgeon cuts too much turbinate tissue out of your sinuses. The turbinate tissue sends signals to the brain and heart informing the body how much oxygen the body is getting. When your turbinates are damaged or too much is taken out, you truly will want to die. It feels like suffocating or drowning 24/7. Your whole body will go into a nervous system meltdown. It feels like my entire body is melting. My heart is throbbing because I can never catch my breath. When I got it, I didnt sleep for the first 2 months, I sat there shaking in bed, my head spinning, I just keep begging for a quick death.

[…] Many, especially me, wish I had cancer and/or AIDS, at the very least there is a chance of a cure with those conditions. With ENS, there is no sympathy, no cure, and worst of all, no understanding. No one truly knows the horror of this condition. […]

I hope by writing this, I can convince everyone to stay away from turbinate reduction surgeries. My doctor told me that it would help me breath through my nose better, instead I have one foot in my grave. ENT Doctors are covering up this condition. I went to 3 doctors, all 3 said I look like I have ENS, but not one of them will put it into my medical file. So when I die, no one will know it was the ENS. I beg you all to spread the word about this condition. […] These doctors are just getting away with the torture of so many lives. ENT doctors keep saying this condition is a thing of the past, something that only happened 50 years ago. […] In the year 2011, me being only 22 years old, walked into the operating room and was murdered. […]  All I needed was my septum repaired, instead I got death sentence (cancel that, torturing sentence). If I choose to live, I will be tortured. […] this condition often gets worse as time goes on too.

Please dont make the same mistake I did. I cant even really blame myself. […] all I needed was my septum repaired, not this. WHY ME? […] WHY in this time and age of technology is this still happening? My mother died of severe emphysema from smoking, and now I have to die from a disease that is a million times worse. Please, save the lives of others. I will continue to spread the word till my death. Peace be with you all.”

/ Anonymous ENS sufferer