ENS has enjoyed a surge of three new mainstream websites publishing articles on empty nose syndrome in the month of August:
- Medical News Today: http://www.medicalnewstoday.com/articles/318813.php
- Healthline: http://www.healthline.com/health/empty-nose-syndrome#outlook7
- Sixth Tone: http://www.sixthtone.com/news/1000640/the-invisible-pain-of-empty-nose-syndrome
The Medical News Today article offers a succinct, scientific overview of ENS and it is broken into Causes, Symptoms, ENS and Turbinate Surgery, Diagnosis, Treatment, and Outlook. The Healthline article offers a similar succinct, scientific format, but is a bit more conversational and it includes increased context to ENS, such as briefly discussing its history. This article is broken up into Symptoms, Causes, Condition History, Diagnosis, Treatment, and Outlook. Both of these articles do a nice job of summarizing ENS. The Healthline article also referred its readers to the Empty Nose Syndrome International Association (ENSIA) website.
The Sixth Tone article entitled, The Invisible Pain of Empty Nose Syndrome, highlights the story of ENS sufferer from China, Sun Sulin, while also providing quotes from leaders in the field. Sun’s story started as a project manager at a chemical engineering institute to being totally crippled by ENS after her 2013 turbinate reduction surgery, including most significantly a profound sense of suffocation. According to the article, Sun had part of her inferior turbinates removed without her knowledge. This article goes on to highlight the challenges in seeking help and recognition from both family members and the medical profession, as well as the devastating impact ENS can have on one’s life. We at ENSIA are very proud of Sun for bravely sharing her story, which was a powerful news story and will no doubt be used to help others and create further awareness for ENS. Thanks are also in order to our ENS-knowledgeable physicians, Dr. Subinoy Das as well as Dr. Jayakar Nayak, who contributed to this article by sharing valuable context, which greatly enhanced the final product. For further information on Sun’s story, you are encouraged to watch the following video: https://www.youtube.com/watch?v=T6nB0gQ7tDY.
Some key, direct quotes from The Invisible Pain of Empty Nose Syndrome include (with bold and underlining for emphasis):
Sometimes I just want to grab a knife and slash my throat to feel the air again. – Sun Sulin.
“Turbinates are critical for survival,” Dr. Subinoy Das, medical director of the U.S. Institute for Advanced Sinus Care and Research, told Sixth Tone in an email.
Jayakar Nayak, an assistant professor of otolaryngology at Stanford University School of Medicine, developed the first six-item questionnaire to help diagnose ENS, though it is not widely used in China. According to Nayak, when ENS sufferers experience psychological symptoms, they are typically a secondary result of the physical nasal issues, importantly clarifying the cause-and-effect pathophysiology of ENS.
Han Demin, a leading ear, nose, and throat (ENT) doctor at Beijing Tongren Hospital, estimated that around 20 percent of patients who receive turbinate reduction surgery in China experience ENS after the procedure.