Member of EURORDIS

We are proud to announce that ENSIA has become a Member Association of EURORDIS (European Association of Rare Diseases) as of July 2016.

EURORDIS advocates for patients, promotes health care policies and services for people living with rare diseases, and advocates for policies that promote the development of medicines and therapies.

ENSIA’s status as a Member Association means that the ENS community will be represented by EURORDIS and this representation will serve as an additional voice for ENS in Europe.