ENSIA

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So far ENSIA has created 42 blog entries.

Testimony of an ENS Patient aka “Scream for Help”

“I got emptENS bleedingy nose syndrome in 2011 and I truly died on that operating table. Empty Nose Syndrome is the worst condition to live with on this planet. You get ENS when a sinus surgeon cuts too much turbinate tissue out of your sinuses. The turbinate tissue sends signals to the brain and heart informing the body how much oxygen the body is getting. When your turbinates are damaged or too much is taken out, you truly will want to die. It feels like suffocating or drowning 24/7. Your whole body will go into a nervous system meltdown. It feels like my entire body is melting. My heart is throbbing because I can never catch my breath. When I got it, I didnt sleep for the first 2 months, I sat there shaking in bed, my head spinning, I just keep begging for a quick death.

[…] Many, especially me, wish I had cancer and/or AIDS, at the very least there is a chance of a cure with those conditions. With ENS, there is no sympathy, no cure, and worst of all, no understanding. No one truly knows the horror of this condition. […]

I hope by writing this, I can convince everyone to stay away from turbinate reduction surgeries. My doctor told me that it would help me breath through my nose better, instead I have one foot in my grave. ENT Doctors are covering up this condition. I went to 3 doctors, all 3 said I look like I have ENS, but not one of them will put it into my medical file. So when I die, no one will know it was the ENS. I beg you all to spread the word about this condition. […] These doctors are just getting away with the torture of so many lives. ENT doctors keep saying this condition is a thing of the past, something that only happened 50 years ago. […] In the year 2011, me being only 22 years old, walked into the operating room and was murdered. […]  All I needed was my septum repaired, instead I got death sentence (cancel that, torturing sentence). If I choose to live, I will be tortured. […] this condition often gets worse as time goes on too.

Please dont make the same mistake I did. I cant even really blame myself. […] all I needed was my septum repaired, not this. WHY ME? […] WHY in this time and age of technology is this still happening? My mother died of severe emphysema from smoking, and now I have to die from a disease that is a million times worse. Please, save the lives of others. I will continue to spread the word till my death. Peace be with you all.”

/ Anonymous ENS sufferer

2017-08-30T17:22:22+00:00

Explanation of Empty Nose Syndrome on Bionity

ENS Disability

An article gives a brief, but comprehensive ENS overview, including:

* Explanation of ENS

* ENS Symptoms

* “Paradoxical obstruction”

* ENS and Atrophic Rhinitis

* Current ENS treatment options

* and other information regarding ENS

Read article: click here (Source: Bionity)

Some quotes of ENT specialists:

“… The excess removal of turbinate tissue might lead to empty-nose syndrome. Excess resection can lead to crusting, bleeding, breathing difficulty (often the paradoxical sensation of obstruction), recurrent infections, nasal odor, pain, and often clinical depression. In one study, the mean onset of symptoms occurred more than 8 years following the turbinectomies.”

““Removal of an entire inferior turbinate for benign disease is strongly discouraged because removal of an inferior turbinate can produce nasal atrophy and a miserable person. Such people unfortunately are still seen in the author’s offices; these people are nasal cripples.”

“Unfortunately, a wide nasal cavity syndrome due to reduction or resection of the inferior turbinate (and/or middle turbinate) is still frequently seen. In our opinion, it is a “nasal crime.”

2017-08-30T17:22:22+00:00

‘Kill the doctors’

An article about ENS on the chinese Global Times.

 

Removing bones in the nose can lead to nightmarish complications. 
The Internet has lit up with conversations about an obscure complication from nose surgery this month, after an article titled “Empty Nose Syndrome – the real murderer of the doctor-stabbing case?” started circulating.

The tragic case happened last month in the No.1 People’s Hospital of Wenling, Zhejiang Province, where Wang Yunjie, the chief physician of the ear-nose-throat department, was stabbed to death by Lian Enqing, a patient who had been dissatisfied by surgery performed at the hospital, the Global Times reported on November 1.

Lian was reportedly suffering from nasal obstruction, headaches and insomnia after nose surgery, but several examinations showed nothing wrong. Lian’s family suspected him of having psychological problems and forced him to accept mental treatment.

The article said Lian killed the doctor because Lian suffered from Empty Nose Syndrome (ENS), a side effect of nasal surgery.

Some typical online commentary, in a QQ group named ENS, came from a patient who only gave his surname as Zhang. “Now I have become used to the pain. But it was terrifying for the first few years, because nobody understood,” he said.

Zhang told Metropolitan that he has had ENS for more than nine years, and it has made him depressed. During the group chat, Zhang and a few other patients mentioned phrases such as “a life worse than death,” “commit suicide” and “kill the doctors” a few times.

There are dozens of groups like this, and many of the groups have over 100 participants.

Read more here.

2017-08-30T17:22:25+00:00

Hope for Dylan

Click here to help Dylan fight against Empty Nose Syndrome !

Hi my name is Penny,

My son Dylan has had medical issues since he was a young boy, and as a result has had multiple surgeries and almost passed away in 2009. 

He was just finally starting to get back on his feet after years of being ill when he had to have yet another sinus surgery in 2013.  He had the misfortune of having his Nasal Turbinate’s removed during this last surgery. The result of which is a condition known as Empty Nose Syndrome (ENS). ENS is a highly debilitating and disabling condition caused by overly aggressive surgical damage of the vital nasal structures. (…)

2016-04-26T09:37:25+00:00

A new article on Buzzfeed about Empty Nose Syndrome

An in-depth article about Empty Nose Syndrome, based on the tragic story of Brett Helling, one of most recent ENS’ victims, and featuring some of the most important ENS experts, just appeared on Buzzfeed.

“Is Empty Nose Syndrome real and if not why are people killing themselves over it?”

2016-04-19T09:46:00+00:00

Did the King of Pop, Michael Jackson, have ENS?

 It has long been speculated by both ENS members and ENS-knowledgeable doctors alike that, due to his multiple nose surgeries, Michael Jackson suffered from ENS.

 Like many ENS sufferers, Mr. Jackson suffered from years of insomnia.  He was inappropriately prescribed the anesthetic drug propofol to help him sleep for 60 consecutive days shortly before his death, the overdose of which was believed to have caused his cardiac arrest. Despite helping you wake up refreshed, propofol disrupts the sleep cycle and renders no restorative rapid eye movement (REM) sleep.   In 1998, Mr. Jackson informed his dentist who specializes in anesthesia, Dr. Catherine Quinn, that his sleep with propofol constituted the “best sleep I ever had.”

 Our collective suspicion that Michael Jackson suffered from ENS was confirmed during the Jackson wrongful death trial when family practitioner, Dr. Alimorad Farschian, testified on August 21st, 2012 that his insomnia was a direct result of a ‘possible’ “empty nose syndrome.” (the link to the video: https://www.youtube.com/watch?v=vzf3TNHGS3k )

2017-08-30T17:22:25+00:00

Objectives

Having Nasal Surgery? Don’t You Become An Empty Nose Victim!, which can be purchased on Amazon.com  at http://http://www.amazon.com/dp/1583851976, is an informative resource on empty nose syndrome to share with family, friends, and healthcare providers.  This award-winning book, which was written by an ENS patient and endorsed by medical doctors, clearly and succinctly offers a personal testimony, a working definition of ENS, a critique of turbinate surgeries, and treatment recommendations.  Given its critical and timely message, Having Nasal Surgery? has attracted an international audience and has been professionally translated into Spanish, and it is in the process of being translated into French and German.  Sales of Having Nasal Surgery? Don’t You Become An Empty Nose Victim!  will go towards ENSIA and similar ENS causes.
With a huge thanks to ENSIA co-founder and translator, J.A. Guzman, Having Nasal Surgery? Don’t You Become An Empty Nose Victim! has been translated intoSpanish under the title, ¿Cirugía nasal? ¡No caiga en las garras del síndrome de la nariz vacía! and it is now available on Amazon.com at http://www.amazon.es/dp/B016FZWWEA or  http://amzn.com/B016FZWWEA, as well as other International Amazon sites.   All proceeds from sales of  ¿Cirugía nasal? ¡No caiga en las garras del síndrome de la nariz vacía! will go directly to ENSIA.
2017-08-30T17:22:25+00:00

Become an ENSIA member!

Be our HERO:  Become an ENSIA MEMBER by filling out the application form here <http://ensassociation.org/empty-nose-syndrome-international-association/membership-join/>!  ENSIA is a LIFE-SAVING organization because ENS is a life-wrecking condition and too many distraught ENS sufferers have committed suicide.  It’s time to say ‘enough is enough!’  Due to the severity of our condition, many once highly productive ENS sufferers are now unable to work and consequently have few resources.  To add insult to injury, the very few, expensive treatment options for ENS are not (yet) covered by health insurance.   Your membership and financial support will show the world that ENS can no longer be ignored and it will help us fight for a cure.

2016-04-19T16:39:11+00:00