ENSIA

About ENSIA

This author has not yet filled in any details.
So far ENSIA has created 39 blog entries.
  • efc719ee-5eb4-44d3-a0ca-a298c35ba598

‘Kill the doctors’

An article about ENS on the chinese Global Times.

 

Removing bones in the nose can lead to nightmarish complications. 
The Internet has lit up with conversations about an obscure complication from nose surgery this month, after an article titled “Empty Nose Syndrome – the real murderer of the doctor-stabbing case?” started circulating.

The tragic case happened last month in the No.1 People’s Hospital of Wenling, Zhejiang Province, where Wang Yunjie, the chief physician of the ear-nose-throat department, was stabbed to death by Lian Enqing, a patient who had been dissatisfied by surgery performed at the hospital, the Global Times reported on November 1.

Lian was reportedly suffering from nasal obstruction, headaches and insomnia after nose surgery, but several examinations showed nothing wrong. Lian’s family suspected him of having psychological problems and forced him to accept mental treatment.

The article said Lian killed the doctor because Lian suffered from Empty Nose Syndrome (ENS), a side effect of nasal surgery.

Some typical online commentary, in a QQ group named ENS, came from a patient who only gave his surname as Zhang. “Now I have become used to the pain. But it was terrifying for the first few years, because nobody understood,” he said.

Zhang told Metropolitan that he has had ENS for more than nine years, and it has made him depressed. During the group chat, Zhang and a few other patients mentioned phrases such as “a life worse than death,” “commit suicide” and “kill the doctors” a few times.

There are dozens of groups like this, and many of the groups have over 100 participants.

Read more here.

  • 8878499_1456366522.3771_funddescription

Hope for Dylan

Click here to help Dylan fight against Empty Nose Syndrome !

Hi my name is Penny,

My son Dylan has had medical issues since he was a young boy, and as a result has had multiple surgeries and almost passed away in 2009. 

He was just finally starting to get back on his feet after years of being ill when he had to have yet another sinus surgery in 2013.  He had the misfortune of having his Nasal Turbinate’s removed during this last surgery. The result of which is a condition known as Empty Nose Syndrome (ENS). ENS is a highly debilitating and disabling condition caused by overly aggressive surgical damage of the vital nasal structures. (…)

  • donations-giving-donate-charity-FinanceFox

Be our Hero!

Be our HERO:  Become an ENSIA SUPPORTER of our LIFE-SAVING organization!  Help ENSIA and ENS sufferers – who are incurably sick and completely disabled – by donating and participating in our awareness-raising campaigns.  Every voice and penny counts!  For more information on how to get involved, please visit the “Help Us!” page at http://ensassociation.org/how-can-you-help/

  • jackson-2s

Did the King of Pop, Michael Jackson, have ENS?

 It has long been speculated by both ENS members and ENS-knowledgeable doctors alike that, due to his multiple nose surgeries, Michael Jackson suffered from ENS.

 Like many ENS sufferers, Mr. Jackson suffered from years of insomnia.  He was inappropriately prescribed the anesthetic drug propofol to help him sleep for 60 consecutive days shortly before his death, the overdose of which was believed to have caused his cardiac arrest. Despite helping you wake up refreshed, propofol disrupts the sleep cycle and renders no restorative rapid eye movement (REM) sleep.   In 1998, Mr. Jackson informed his dentist who specializes in anesthesia, Dr. Catherine Quinn, that his sleep with propofol constituted the “best sleep I ever had.”

 Our collective suspicion that Michael Jackson suffered from ENS was confirmed during the Jackson wrongful death trial when family practitioner, Dr. Alimorad Farschian, testified on August 21st, 2012 that his insomnia was a direct result of a ‘possible’ “empty nose syndrome.” (the link to the video: https://www.youtube.com/watch?v=vzf3TNHGS3k )

Objectives

Having Nasal Surgery? Don’t You Become An Empty Nose Victim!, which can be purchased on Amazon.com  at http://http://www.amazon.com/dp/1583851976, is an informative resource on empty nose syndrome to share with family, friends, and healthcare providers.  This award-winning book, which was written by an ENS patient and endorsed by medical doctors, clearly and succinctly offers a personal testimony, a working definition of ENS, a critique of turbinate surgeries, and treatment recommendations.  Given its critical and timely message, Having Nasal Surgery? has attracted an international audience and has been professionally translated into Spanish, and it is in the process of being translated into French and German.  Sales of Having Nasal Surgery? Don’t You Become An Empty Nose Victim!  will go towards ENSIA and similar ENS causes.
With a huge thanks to ENSIA co-founder and translator, J.A. Guzman, Having Nasal Surgery? Don’t You Become An Empty Nose Victim! has been translated intoSpanish under the title, ¿Cirugía nasal? ¡No caiga en las garras del síndrome de la nariz vacía! and it is now available on Amazon.com at http://www.amazon.es/dp/B016FZWWEA or  http://amzn.com/B016FZWWEA, as well as other International Amazon sites.   All proceeds from sales of  ¿Cirugía nasal? ¡No caiga en las garras del síndrome de la nariz vacía! will go directly to ENSIA.
  • ecop_members_partner

Become an ENSIA member!

Be our HERO:  Become an ENSIA MEMBER by filling out the application form here <http://ensassociation.org/empty-nose-syndrome-international-association/membership-join/>!  ENSIA is a LIFE-SAVING organization because ENS is a life-wrecking condition and too many distraught ENS sufferers have committed suicide.  It’s time to say ‘enough is enough!’  Due to the severity of our condition, many once highly productive ENS sufferers are now unable to work and consequently have few resources.  To add insult to injury, the very few, expensive treatment options for ENS are not (yet) covered by health insurance.   Your membership and financial support will show the world that ENS can no longer be ignored and it will help us fight for a cure.

ENSIA

ENSIA was established as an International Association, incorporating ENS patients, ENS-friendly doctors, and research scientists from around the world in Fall 2014.  ENS is a little known, but severely debilitating post-surgical nasal condition that affects millions of people worldwide, and our membership reflects that.  ENSIA includes members from numerous countries, including Europe, Australia, the United States, India, China, South America, and Latin America.